Sara is having a real hard time dealing with the breakup. She's so sad. What makes things worse is that she can't cry - can't do the physical act of crying - so she has no outlet other than talking. Since her friends have not really been coming around that means she is talking to her nurses and me over and over about it. Somehow it isn't the same.
Then today I realized something that just makes me ache for her (besides the obvious)...she seems to be having trouble with short-term memory. Kind of like Groundhog Day. Every day has been like Monday to her. She has started off the day sad telling the nurse or me that Daniel broke up with her yesterday. I didn't realize until today that she has kind of lost track of days and when things have happened. So, all week she's gone through the event over and over as if it just happened, and is not able to cry. She has not shown any other signs of memory issues (quite to the contrary). Her head nurse and I were discussing today that the magnitude of the loss to her of Daniel could have been trauma enough to bring this on.
So we've discussed a few things to try and help her through this - memory exercises, putting up a white board with the day and date on it, encouraging a blog entry daily, and giving her friends calls to see if they can stop by and give her a chance to talk here and there.
I understand that her condition is a lot for anybody to get their head around. Nobody more than Sara understands that. But its still the same Sara inside - goofy, smart, loving. She's getting better very, very slowly. But she needs something that I can't buy, medicine can't prescribe, and only her friends can provide.
Friday, October 31, 2008
Tuesday, October 28, 2008
Pix from a quiet, birthday at home...
Nom nom nom...cake cat
Michael and the amazing balloon tongue...of DOOM...
Yo Yo...I'm so clown gangsta....
I am PROPELLERHEAD...
Michael and the amazing balloon tongue...of DOOM...
Yo Yo...I'm so clown gangsta....
I am PROPELLERHEAD...
With my magic sword and shield I will slay you from my bed... get closer...ok...now swing your neck over my sword...
Monday, October 27, 2008
Friday, October 24, 2008
One year ago today
At approximately 11:20am on October 24, 2007, Sara's entire life changed on Highway 101. She left work at the veterinary hospital with plenty of time to spare before class in Santa Rosa. She changed clothes, grabbed her bag and left in her beloved metalic baby blue Cruiser affectionately named "Maria". She drove on Rohnert Park expressway crossing over 101 and went to her bank. She pulled out a crisp, new $20 bill so she could catch some lunch after class. Then, folding it in quarters put it and her ATM receipt in her little white wallet, snapping it closed.
Back in her car she headed to the Rohnert Park Expressway on ramp to 101N, a drive she's made a hundred times, with me and alone. Traveling up the long ramp she gained speed and passed where the carpool lane and regular lane merge before meeting 101. Now she's at the long merge on 101, where the ramp slowly melts into the lane. Looking over her shoulder to the left she is picking her spot to take the lane. Traffic is light. Then she feels it - the hit. Somebody has hit her from the right. Suddenly pushed into the traffic lane and moving towards the fast lane she swerves to get back - squealing tires signal she's out of control - countersteer and fishtail right, then left. Knowing she's in trouble she does what she's been taught to do, what she's practiced with me to do - get off the road. She points Maria towards the shoulder to exit the roadway and get under control. She hits the dry grass and dirt while braking and the car rotates to face a bit left. Its ok - speed is coming down and she's off the road, the car will come to a stop and she can catch her breath and take in what just happened.
But in an instant everything is changing - the back of the car is up in the air and the ground is rushing towards her. She sees the ditch while she's already flipping in it. Then as the top of the car hits the ground it all goes black. She's spared the sound of glass breaking, the wrenching metal, the flash of pain as her neck and head take the entire force of the accident. She's suspended, upside down by her seatbelt, in a velvet blackness of unconsciousness, that is sparing her from knowledge of the car on fire or the hot fluid that has dripped onto her head and burned her, or of the frantic people trying to break windows to get to her, or of the man who threw handfuls of wet mud on the fire to keep it from growing. She didn't hear the sirens or the people calling her, trying to help her. She was spared the horrible pictures and memories, but awoke after being extracted to excruciating pain and not being able to communicate - hearing words in her head and moans out of her mouth, desperately trying to let them know she was hurt and in pain. The pain shook her and threw her in and out of consciousness. Snapshots of memories litter her mind between the accident and later that night. Little islands of awake where she was taking in everything she could hear and trying to tell us what she felt.
She hears me there off and on, and is comforted by it. I am there off and on, and comforted by it. The doctor said she was a "very lucky girl". No major injuries, no internal bleeding. She should wake up in a few hours with "a hell of a headache". She'll spend a couple of days in the hospital then come home. She has a minor fracture of the side of a vertebrae in her neck...but other than that no broken anything. Seatbelt bruise, some cuts, minor chest contusions, a little aspirate in her lungs.
The neurosurgeon comes on and is going to do an MRI to make sure they didn't miss anything. I'm letting her friends come write silly notes on her arms for when she wakes up. We take sharpie and write love yous and get wells for her to enjoy when she wakes up. The doc comes back and says the MRI is clear and he's going to send her to ICU for the night to observe, but she'll wake up in a few hours.
But she never really does. She becomes conscious after she's off the medication used to paralyze and keep her calm with the ventilator, but she doesn'st really "awaken" as in eyes open, etc. But she's there. She hears me, the nurse, the sounds of the equipment. And she also hears her heart, her blood pumping through her veins and arteries. She hears it loud and then painfully loud as an incredible pain grows in her head. She wants to scream and grab her head, but her limbs are failing her, her voice is silent. Her body is not her own as the sword of a stroke slowly slices into her brainstem. She's screaming inside, screaming for help, praying somebody hears her.
I do. I don't hear her, but I feel her. I feel her fear and agitation. I feel something is wrong and start desperately trying to get the nurse to listen, to get the doctor. She must have thought I was crazy, until she finally did and found that they had missed something, something major and devistating. Knowing the force of the accident went to her head and neck they still managed to miss the major injuries to the arteries of her neck. They missed the dissections, the tearing open of the arteries and the clots they produced. They missed the reduced circulation to her brain and the risk that those clots would break loose and travel into her brain. They didn't see it. They didn't look for it. They didn't recognize it when it was happening. These trusted hands, the doctors and nurses of the so-called Trauma Center, gave her no better care than a regular Emergency Room, but with the same complacence and lack of attention.
She should have been safe. I worked so hard to prepare her for driving, driving emergencies, every conceivable thing I could prepare her for. We practiced, over and over, maintaining control in different circumstances. She knew the mantra about "if things get out of hand get off the road". She had the presence of mind to keep from hurting anyone else. But a ditch that should not have been there changed all that. And doctors who should have been qualified for a higher level of care, but weren't, changed all that. And them not registering the mechanism of injury and doing just ONE MORE TEST, even a cheap duplex ultrasound, changed all that.
In an instant, on October 24, 2007, Sara's life, and the lives of everyone around her, changed forever. One year ago today.
Back in her car she headed to the Rohnert Park Expressway on ramp to 101N, a drive she's made a hundred times, with me and alone. Traveling up the long ramp she gained speed and passed where the carpool lane and regular lane merge before meeting 101. Now she's at the long merge on 101, where the ramp slowly melts into the lane. Looking over her shoulder to the left she is picking her spot to take the lane. Traffic is light. Then she feels it - the hit. Somebody has hit her from the right. Suddenly pushed into the traffic lane and moving towards the fast lane she swerves to get back - squealing tires signal she's out of control - countersteer and fishtail right, then left. Knowing she's in trouble she does what she's been taught to do, what she's practiced with me to do - get off the road. She points Maria towards the shoulder to exit the roadway and get under control. She hits the dry grass and dirt while braking and the car rotates to face a bit left. Its ok - speed is coming down and she's off the road, the car will come to a stop and she can catch her breath and take in what just happened.
But in an instant everything is changing - the back of the car is up in the air and the ground is rushing towards her. She sees the ditch while she's already flipping in it. Then as the top of the car hits the ground it all goes black. She's spared the sound of glass breaking, the wrenching metal, the flash of pain as her neck and head take the entire force of the accident. She's suspended, upside down by her seatbelt, in a velvet blackness of unconsciousness, that is sparing her from knowledge of the car on fire or the hot fluid that has dripped onto her head and burned her, or of the frantic people trying to break windows to get to her, or of the man who threw handfuls of wet mud on the fire to keep it from growing. She didn't hear the sirens or the people calling her, trying to help her. She was spared the horrible pictures and memories, but awoke after being extracted to excruciating pain and not being able to communicate - hearing words in her head and moans out of her mouth, desperately trying to let them know she was hurt and in pain. The pain shook her and threw her in and out of consciousness. Snapshots of memories litter her mind between the accident and later that night. Little islands of awake where she was taking in everything she could hear and trying to tell us what she felt.
She hears me there off and on, and is comforted by it. I am there off and on, and comforted by it. The doctor said she was a "very lucky girl". No major injuries, no internal bleeding. She should wake up in a few hours with "a hell of a headache". She'll spend a couple of days in the hospital then come home. She has a minor fracture of the side of a vertebrae in her neck...but other than that no broken anything. Seatbelt bruise, some cuts, minor chest contusions, a little aspirate in her lungs.
The neurosurgeon comes on and is going to do an MRI to make sure they didn't miss anything. I'm letting her friends come write silly notes on her arms for when she wakes up. We take sharpie and write love yous and get wells for her to enjoy when she wakes up. The doc comes back and says the MRI is clear and he's going to send her to ICU for the night to observe, but she'll wake up in a few hours.
But she never really does. She becomes conscious after she's off the medication used to paralyze and keep her calm with the ventilator, but she doesn'st really "awaken" as in eyes open, etc. But she's there. She hears me, the nurse, the sounds of the equipment. And she also hears her heart, her blood pumping through her veins and arteries. She hears it loud and then painfully loud as an incredible pain grows in her head. She wants to scream and grab her head, but her limbs are failing her, her voice is silent. Her body is not her own as the sword of a stroke slowly slices into her brainstem. She's screaming inside, screaming for help, praying somebody hears her.
I do. I don't hear her, but I feel her. I feel her fear and agitation. I feel something is wrong and start desperately trying to get the nurse to listen, to get the doctor. She must have thought I was crazy, until she finally did and found that they had missed something, something major and devistating. Knowing the force of the accident went to her head and neck they still managed to miss the major injuries to the arteries of her neck. They missed the dissections, the tearing open of the arteries and the clots they produced. They missed the reduced circulation to her brain and the risk that those clots would break loose and travel into her brain. They didn't see it. They didn't look for it. They didn't recognize it when it was happening. These trusted hands, the doctors and nurses of the so-called Trauma Center, gave her no better care than a regular Emergency Room, but with the same complacence and lack of attention.
She should have been safe. I worked so hard to prepare her for driving, driving emergencies, every conceivable thing I could prepare her for. We practiced, over and over, maintaining control in different circumstances. She knew the mantra about "if things get out of hand get off the road". She had the presence of mind to keep from hurting anyone else. But a ditch that should not have been there changed all that. And doctors who should have been qualified for a higher level of care, but weren't, changed all that. And them not registering the mechanism of injury and doing just ONE MORE TEST, even a cheap duplex ultrasound, changed all that.
In an instant, on October 24, 2007, Sara's life, and the lives of everyone around her, changed forever. One year ago today.
Thursday, October 23, 2008
Long Lost Update
First, I must apologize for my lack of recent updates. It is due only to lack of time and excess of fatigue. I've gotten to the point that when i'm not working or taking care of her I am trying to catch a nap here and there.
As you have seen on the blog, Sara is using her communication device more. She is more apt to request it thank make us try and figure out what she wants or is thinking from her eye movements. And, even those have improved and become clearer. Her face is so expressive these days. She can now move all parts of her face that should move. Her facial expressions are very close to pre-stroke. She is doing better on her pucker, but can't quite get the fish lips all pursed up. Fun to watch her trying.
Sara's therapies have been going well. PT has stopped, so that we can pick up and go forward. OT has a few more sessions. But SLP (speech therapy) is still going. She is able to push her tongue out both sides of her mouth, open and close her lips completely, move both upper and lower lips, mouth more words (recognizably). We've started putting in a fenistrated canula (one with a hole) so air can pass into her mouth. She is vibrating those vocal cords. The pathologist says it sounds like she's currently able to close her cords about half way. It is enough for sound, but very whispery. Any sound makes her laugh this awful sound, which makes her laugh more until she coughs...its all good for her.
Her breathing is doing very well. She is taking deeper breaths and has better control. Her secretions are still up there, but i'm thinking that's just normal for her - and having a foreign body stuck in your airway. Certainly making sure the "balloon" [the part of the traech that holds it in place in her airway] is not over inflated has helped her secretions and comfort. [the last one got over inflated and blew out the balloon on her...yuck]
Somebody has to remind this girl that she's a quadriplegic.... LOL. She's moving everything, just most of it not on purpose yet. I watch her sleep and she moves in her sleep, arms, legs, head, face. When she coughs or stretches the arms move, legs stretch. her shoulders move a LOT now. She is consistently getting her head up off the bed against gravity (and when she's in the wheelchair moving it off the headrest to upright), moving stronger left and right. Her cough is down-right forceful - lifting shoulders clear up off the bed - and in most cases, legs and arms, too. (like Coughing Crunches. girl is going to have abs of steel...)
Didn't have any help this weekend..(boo hoo), but she and I had a good day on Saturday. I put her on the floor in the living room, on top of a deflated air bed. Then I inflated it and we started laughing so hard when it folded her up like a taco. Then I got the bright idea to step on one side...which made her roll over to the opposite direction...and we laughed some more. Then I stepped on the opposite side, too and she rolled back. Everything was fine until the air mattress lifted me up off the floor and we ended up in a laughing heap in the middle of the air mattress, tangled limbs and lines. The dogs were going nuts thinking I was hurting her... We LOLd so hard. Then I curled up next to her and we just cuddled and watched TV. well, not JUST TV...Lifetime, Television for Women...hahaha That and some silly teenager show she likes called Degrassi...
She's spending about 3 to 5 hours up daily in the wheelchair. Her main complaint is her tailbone. We have a Roho cushion for her, but with no meat on your tail even the best cushion isn't enough. That girl told me this morning I had serious ba dunk a dunk (that's big butt for the rest of you white people) and then laughed. Then said she used to. I told her not to worry...she'll get her big butt back again someday. Just not on her Nestle Vanilla tube feeding fluid...
Its good for her to be upright. Better for circulation, joints, breathing, everything. After a while she gets real tired and wants to go back to bed. But as soon as I figure out how to attach oxygen and suction to her chair we will start going out for walks in the evening. That will help my fitness, and get her outside and seeing something other than the inside of the house.
She thanked me today for bringing her home. It was nice. She knows its hard - especially with the nursing situation and my job. But, it is still so very worth it - for her and for us all.
Every night I put her to bed. I carefully position her and put on her hand and foot braces. Do her treatment before bed. Grab a charged iPod and put in the earbuds, start up the R&B playlist from my iTunes. (so nice to fall asleep to...) Then I grab a warm wash cloth and wipe down her face and lips. Put carmex on her lips as she puckers. Then I pull out the laundry and trash, fill up her tube feed for the night, check the humidifier water level and once everything seems in order I am ready to say goodnight. I lean down and kiss her on the forehead. Then take a finger and draw a line from the kiss to the end of her nose, then poke her nose. Then kiss my finger and put it in front of her lips, within pucker distance, and she kisses my finger. Then she mouths "Mom" as I touch her cheek and we look into each others eyes. Its a special, quiet time for just her and I. Sometimes I tell her how very glad I am that she's here. Other times I say nothing at all. But when I stand at the door and with sign language ask her if she wants it closed, and she says "yes" with her blink, I close the door with a sense of peace that only having my baby girl at home can bring...
As you have seen on the blog, Sara is using her communication device more. She is more apt to request it thank make us try and figure out what she wants or is thinking from her eye movements. And, even those have improved and become clearer. Her face is so expressive these days. She can now move all parts of her face that should move. Her facial expressions are very close to pre-stroke. She is doing better on her pucker, but can't quite get the fish lips all pursed up. Fun to watch her trying.
Sara's therapies have been going well. PT has stopped, so that we can pick up and go forward. OT has a few more sessions. But SLP (speech therapy) is still going. She is able to push her tongue out both sides of her mouth, open and close her lips completely, move both upper and lower lips, mouth more words (recognizably). We've started putting in a fenistrated canula (one with a hole) so air can pass into her mouth. She is vibrating those vocal cords. The pathologist says it sounds like she's currently able to close her cords about half way. It is enough for sound, but very whispery. Any sound makes her laugh this awful sound, which makes her laugh more until she coughs...its all good for her.
Her breathing is doing very well. She is taking deeper breaths and has better control. Her secretions are still up there, but i'm thinking that's just normal for her - and having a foreign body stuck in your airway. Certainly making sure the "balloon" [the part of the traech that holds it in place in her airway] is not over inflated has helped her secretions and comfort. [the last one got over inflated and blew out the balloon on her...yuck]
Somebody has to remind this girl that she's a quadriplegic.... LOL. She's moving everything, just most of it not on purpose yet. I watch her sleep and she moves in her sleep, arms, legs, head, face. When she coughs or stretches the arms move, legs stretch. her shoulders move a LOT now. She is consistently getting her head up off the bed against gravity (and when she's in the wheelchair moving it off the headrest to upright), moving stronger left and right. Her cough is down-right forceful - lifting shoulders clear up off the bed - and in most cases, legs and arms, too. (like Coughing Crunches. girl is going to have abs of steel...)
Didn't have any help this weekend..(boo hoo), but she and I had a good day on Saturday. I put her on the floor in the living room, on top of a deflated air bed. Then I inflated it and we started laughing so hard when it folded her up like a taco. Then I got the bright idea to step on one side...which made her roll over to the opposite direction...and we laughed some more. Then I stepped on the opposite side, too and she rolled back. Everything was fine until the air mattress lifted me up off the floor and we ended up in a laughing heap in the middle of the air mattress, tangled limbs and lines. The dogs were going nuts thinking I was hurting her... We LOLd so hard. Then I curled up next to her and we just cuddled and watched TV. well, not JUST TV...Lifetime, Television for Women...hahaha That and some silly teenager show she likes called Degrassi...
She's spending about 3 to 5 hours up daily in the wheelchair. Her main complaint is her tailbone. We have a Roho cushion for her, but with no meat on your tail even the best cushion isn't enough. That girl told me this morning I had serious ba dunk a dunk (that's big butt for the rest of you white people) and then laughed. Then said she used to. I told her not to worry...she'll get her big butt back again someday. Just not on her Nestle Vanilla tube feeding fluid...
Its good for her to be upright. Better for circulation, joints, breathing, everything. After a while she gets real tired and wants to go back to bed. But as soon as I figure out how to attach oxygen and suction to her chair we will start going out for walks in the evening. That will help my fitness, and get her outside and seeing something other than the inside of the house.
She thanked me today for bringing her home. It was nice. She knows its hard - especially with the nursing situation and my job. But, it is still so very worth it - for her and for us all.
Every night I put her to bed. I carefully position her and put on her hand and foot braces. Do her treatment before bed. Grab a charged iPod and put in the earbuds, start up the R&B playlist from my iTunes. (so nice to fall asleep to...) Then I grab a warm wash cloth and wipe down her face and lips. Put carmex on her lips as she puckers. Then I pull out the laundry and trash, fill up her tube feed for the night, check the humidifier water level and once everything seems in order I am ready to say goodnight. I lean down and kiss her on the forehead. Then take a finger and draw a line from the kiss to the end of her nose, then poke her nose. Then kiss my finger and put it in front of her lips, within pucker distance, and she kisses my finger. Then she mouths "Mom" as I touch her cheek and we look into each others eyes. Its a special, quiet time for just her and I. Sometimes I tell her how very glad I am that she's here. Other times I say nothing at all. But when I stand at the door and with sign language ask her if she wants it closed, and she says "yes" with her blink, I close the door with a sense of peace that only having my baby girl at home can bring...
Tuesday, October 21, 2008
Monday, October 20, 2008
Friday, October 17, 2008
Tuesday, October 14, 2008
Breif Update
I felt I should update this just so that everybody isn't wondering if something has gone horribly wrong. Quite the opposite. Sara is doing well. She is getting up in her wheelchair for several hours a day, and spending increased amounts of time without any additional oxygen flow. She is Healthy, Stable, and happy.
Her Birthday was on the 11th. We didn't do much. I came over, crawled into bed with her for about 5 hours while we watched stuff on the TV. Pretty low key.
~Daniel H.
Her Birthday was on the 11th. We didn't do much. I came over, crawled into bed with her for about 5 hours while we watched stuff on the TV. Pretty low key.
~Daniel H.
Saturday, October 4, 2008
Time flies...
when you are having fun. Is that the saying? LOL
Well, we are having fun here. Its hard work taking care of her - well, more time consuming and never ending, but well worth it.
Sara is doing GREAT! Her lungs have been improving, she breathes easier. She has been getting more movement and is participating fully in her therapies.
On the movement front - she is now able to move her head side to side, nod up and down, pick her head up when she flops forward to the right side, still working on the left. When she picks her head up off the pillow she is also getting her shoulders off and moving, and that is moving her arms slightly. She also is able to extend her fingers from neutral. Involuntarily, she is yawning and stretching and shifts her own position in bed when sleeping. Those involuntary movements are normally absent in locked-in patients. Her range of motion exercises are going very well. She has improved quite a lot even in the three weeks she's been home.
On the voice front - her speech therapy is going well. We have been working with her taking deep breaths, then we plug her traech so air will move through her throat, and she is trying to say "ah". It comes out a little cracky, but she's definately moving across those vocal cords. Her neck strength will help that, and she gets so excited when she hears any of her voice come through. We do that a couple of times a day.
On the occupational therapy front - she has a wheelchair with a great cushion in it. She's been getting up (ok, we get her up in a hoyer lift and put her in the chair) and spending between 2 to 5 hours in the chair a day. We'll be working up to twice a day for the same periods. The goal being that she does not fatigue and is reasonably comfortable in the chair.
Also, due to her amount of head, neck and mouth movement available, the OT is going to add a mouth wand to her therapy. That is basically a Y that she bites in her mouth with a long pointer on the end so that she can touch the computer or hit a sensor or actuate a buzzer. Either way, she's getting function back, slowly but surely. She gets so excited when she is able to do something for the first time, and even more excited when she is able to repeat it. She works it and works it until she can't anymore. Just wait until we get that head and neck all stabilized...we'll start working down the body (like the nerves do).
She and I are going to watch Heroes. She's up in the chair now. Its good for her circulation and heart. Basically part of her daily workout. And, sitting next to her i'll flop her head off to the left and push her to pick it back up.
Since she's home and stable we're going to go ahead and open it up for friends to come by and start visiting her. Up to now its been family and Sara's closest circle of friends. But anyone who knows her and would like to visit can give me a call to schedule. We have a big white board calendar we put all that stuff up on so we won't overwhelm her. But, truly, she is doing well and would love to start seeing other people she cares about.
I've taken her outside to the yard at night and we've just looked up at the stars. She gets
Well, we are having fun here. Its hard work taking care of her - well, more time consuming and never ending, but well worth it.
Sara is doing GREAT! Her lungs have been improving, she breathes easier. She has been getting more movement and is participating fully in her therapies.
On the movement front - she is now able to move her head side to side, nod up and down, pick her head up when she flops forward to the right side, still working on the left. When she picks her head up off the pillow she is also getting her shoulders off and moving, and that is moving her arms slightly. She also is able to extend her fingers from neutral. Involuntarily, she is yawning and stretching and shifts her own position in bed when sleeping. Those involuntary movements are normally absent in locked-in patients. Her range of motion exercises are going very well. She has improved quite a lot even in the three weeks she's been home.
On the voice front - her speech therapy is going well. We have been working with her taking deep breaths, then we plug her traech so air will move through her throat, and she is trying to say "ah". It comes out a little cracky, but she's definately moving across those vocal cords. Her neck strength will help that, and she gets so excited when she hears any of her voice come through. We do that a couple of times a day.
On the occupational therapy front - she has a wheelchair with a great cushion in it. She's been getting up (ok, we get her up in a hoyer lift and put her in the chair) and spending between 2 to 5 hours in the chair a day. We'll be working up to twice a day for the same periods. The goal being that she does not fatigue and is reasonably comfortable in the chair.
Also, due to her amount of head, neck and mouth movement available, the OT is going to add a mouth wand to her therapy. That is basically a Y that she bites in her mouth with a long pointer on the end so that she can touch the computer or hit a sensor or actuate a buzzer. Either way, she's getting function back, slowly but surely. She gets so excited when she is able to do something for the first time, and even more excited when she is able to repeat it. She works it and works it until she can't anymore. Just wait until we get that head and neck all stabilized...we'll start working down the body (like the nerves do).
She and I are going to watch Heroes. She's up in the chair now. Its good for her circulation and heart. Basically part of her daily workout. And, sitting next to her i'll flop her head off to the left and push her to pick it back up.
Since she's home and stable we're going to go ahead and open it up for friends to come by and start visiting her. Up to now its been family and Sara's closest circle of friends. But anyone who knows her and would like to visit can give me a call to schedule. We have a big white board calendar we put all that stuff up on so we won't overwhelm her. But, truly, she is doing well and would love to start seeing other people she cares about.
I've taken her outside to the yard at night and we've just looked up at the stars. She gets
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