Saturday, October 31, 2009
Friday, October 30, 2009
Thursday, October 29, 2009
Wednesday, October 28, 2009
Tuesday, October 27, 2009
Monday, October 26, 2009
Sunday, October 25, 2009
Saturday, October 24, 2009
Two Years Ago Today
24 October 2007 - Everything changed in an instant.
I have stood on the very spot that her car hit and flipped over. I have sifted through the broken glass on the ground. I have picked up every identifiable remnant from her car, hoping foolishly that it would be the one piece that would fix her. I walked from one side of the ditch to the other. One side she was a bright, happy, vibrant 19 year old with medical school, marriage and a bright future in front of her. The other side of the ditch she was a "very unfortunate young woman" who had a broken neck, split arteries and clots moving up into her brain, starving her brainstem of oxygen, killing cells, dimming dreams. I laid on the ground where she was suspended in her car, strangers trying to put the fire out, breaking windows trying to get to her. I prayed that she was already unconscious and spared the terror of knowing she was trapped and hurt. I have cried silent Thank You's to those who stopped to save her and all who have helped her since.
She has come so far since then - since that lifeless heap, barely alive. She and I finally came to terms that she is never going to recover and go back to how she was before. Anything she does now is because she has learned it all over again, sometimes in a new way. And with that, anything is possible for her. Instead of waiting for some switch to magically flip, she can focus on listening to her body and getting her mind to talk to what is listening. And then teaching it to listen regularly.
Her face no longer twists and deforms when she tries to move it. Her smile is has it has always been since a baby. She mouths the word "mom" silently to me and it encompasses "Thank You", "I Love You", and all good feelings and appreciation she has in the simplest form. She turns her head side to side, laughs constantly and blinks answers to questions with sparkling blue eyes.
We have all changed. We have learned to live with so much less than before. Priorities are different. Fears are different. Hopes are different. But one thing stays forever the same - Sara's tenacity. She has been a feisty little girl her whole life. I underestimated just how strong she truly is. She never realized just how much I love her. We both never knew just how unwavering her brother could be. He has become the anchor for our family - tethering me to the ground when I might be sucked into the tornado above our lives, and holding his sister closely to him, sheltering her from the pieces swirling around in the air. And through it all she never gives up hope. She understands what the medical minds have said and what the data says about her prognosis. But she also has heard so many times that "we know very little about locked-in syndrome, but..." and then they speak the limits as they see them.
I believe in Sara. I'll always make sure she knows what the current information is on her condition, but I will never tell her she can't do anything. I believe in Sara. And if anyone is going to find a way out of this it is her. And she has unlocked some parts already. It makes her so happy that when I crawl in bed with her at night and hug her that she can lift her head and place it against mine - hugging me back. My heart and soul swell with hope and love whenever she does it and makes it easier to get through the next day, and the next.
Who knows what the next two years will hold? I certainly don't. But I do know that I am happy every day she is alive, and she says she is too. She has the best life we can give her in the financial condition we are in. But she has so much love flowing to her she can't help but be happy. And happy is the most wonderful medicine there is.
Thank You, baby girl, for calling out to me in your thougth - for telling me you were alive - for screaming in your thougth for me - that I would hear you and not let them take you - for trusting that your Mother would hear you and save you.
Thank You, everyone, for the endless good thought, support in so many ways (financial, emotional, physical, spiritual) so that I could be there daily with her while she was in the hospital and make a place where we could bring her home. And for being there for us so that we could save her.
I have stood on the very spot that her car hit and flipped over. I have sifted through the broken glass on the ground. I have picked up every identifiable remnant from her car, hoping foolishly that it would be the one piece that would fix her. I walked from one side of the ditch to the other. One side she was a bright, happy, vibrant 19 year old with medical school, marriage and a bright future in front of her. The other side of the ditch she was a "very unfortunate young woman" who had a broken neck, split arteries and clots moving up into her brain, starving her brainstem of oxygen, killing cells, dimming dreams. I laid on the ground where she was suspended in her car, strangers trying to put the fire out, breaking windows trying to get to her. I prayed that she was already unconscious and spared the terror of knowing she was trapped and hurt. I have cried silent Thank You's to those who stopped to save her and all who have helped her since.
She has come so far since then - since that lifeless heap, barely alive. She and I finally came to terms that she is never going to recover and go back to how she was before. Anything she does now is because she has learned it all over again, sometimes in a new way. And with that, anything is possible for her. Instead of waiting for some switch to magically flip, she can focus on listening to her body and getting her mind to talk to what is listening. And then teaching it to listen regularly.
Her face no longer twists and deforms when she tries to move it. Her smile is has it has always been since a baby. She mouths the word "mom" silently to me and it encompasses "Thank You", "I Love You", and all good feelings and appreciation she has in the simplest form. She turns her head side to side, laughs constantly and blinks answers to questions with sparkling blue eyes.
We have all changed. We have learned to live with so much less than before. Priorities are different. Fears are different. Hopes are different. But one thing stays forever the same - Sara's tenacity. She has been a feisty little girl her whole life. I underestimated just how strong she truly is. She never realized just how much I love her. We both never knew just how unwavering her brother could be. He has become the anchor for our family - tethering me to the ground when I might be sucked into the tornado above our lives, and holding his sister closely to him, sheltering her from the pieces swirling around in the air. And through it all she never gives up hope. She understands what the medical minds have said and what the data says about her prognosis. But she also has heard so many times that "we know very little about locked-in syndrome, but..." and then they speak the limits as they see them.
I believe in Sara. I'll always make sure she knows what the current information is on her condition, but I will never tell her she can't do anything. I believe in Sara. And if anyone is going to find a way out of this it is her. And she has unlocked some parts already. It makes her so happy that when I crawl in bed with her at night and hug her that she can lift her head and place it against mine - hugging me back. My heart and soul swell with hope and love whenever she does it and makes it easier to get through the next day, and the next.
Who knows what the next two years will hold? I certainly don't. But I do know that I am happy every day she is alive, and she says she is too. She has the best life we can give her in the financial condition we are in. But she has so much love flowing to her she can't help but be happy. And happy is the most wonderful medicine there is.
Thank You, baby girl, for calling out to me in your thougth - for telling me you were alive - for screaming in your thougth for me - that I would hear you and not let them take you - for trusting that your Mother would hear you and save you.
Thank You, everyone, for the endless good thought, support in so many ways (financial, emotional, physical, spiritual) so that I could be there daily with her while she was in the hospital and make a place where we could bring her home. And for being there for us so that we could save her.
Friday, October 23, 2009
Thursday, October 22, 2009
Tuesday, October 20, 2009
Monday, October 19, 2009
Sunday, October 18, 2009
Friday, October 16, 2009
Thursday, October 15, 2009
Wednesday, October 14, 2009
Tuesday, October 13, 2009
Monday, October 12, 2009
Sunday, October 11, 2009
Ok. The reason the blog is now private
We have a lawsuit against Caltrans. The ditch that Sara's car flipped in was classed as unsafe back in 2004 and never fixed. Our lawyers have advised us that keeping the blog open gives Caltrans access to information about Sara they don't need and can try and use against her. (lawyers twist lots of stuff.)
I have to ask that if you are now in the private part of the blog that you do not share things or forward any entries outside of this circle. We need to protect her from those who would minimize her injuries and prognosis, or who would harm her being made as "whole" as she can be.
I couldn't take the blog away from her. She has worked so hard to communicate and has come to rely on those people who respond to her posts. She doesn't feel as alone as she did before. She has an outlet, and expression, of her thoughts. I didn't realize how important that was until she explained it to me. It's almost like being trapped in the dark. Her communication is her light, and you are the rays of sunshine that come through the windows to warm her face.
You will now get to see stuff nobody else is allowed to see or know about her. If you can't keep our confidence I ask you to let me know and I will gladly remove you from access.
Kristina
I have to ask that if you are now in the private part of the blog that you do not share things or forward any entries outside of this circle. We need to protect her from those who would minimize her injuries and prognosis, or who would harm her being made as "whole" as she can be.
I couldn't take the blog away from her. She has worked so hard to communicate and has come to rely on those people who respond to her posts. She doesn't feel as alone as she did before. She has an outlet, and expression, of her thoughts. I didn't realize how important that was until she explained it to me. It's almost like being trapped in the dark. Her communication is her light, and you are the rays of sunshine that come through the windows to warm her face.
You will now get to see stuff nobody else is allowed to see or know about her. If you can't keep our confidence I ask you to let me know and I will gladly remove you from access.
Kristina
Blog is now Private
We will be moving it to her site in a couple of weeks. Then it will be a forum type where users can also post up things to Sara.
Saturday, October 10, 2009
Friday, October 9, 2009
Thursday, October 8, 2009
Wednesday, October 7, 2009
Tuesday, October 6, 2009
I need a knot
I'm at the end of my rope. I have load upon load on my shoulders and no matter what I do I just keep getting more. I honestly don't know how I'm going to keep taking it...
I lost the truck again. Funny thing, repo. Once they've come and gotten it and you get it back they can come take it again if you are even late. Live and learn. So, they came and got my truck and now I can't get it back without paying off the contract. Crap. Nice.
And now, I am apparently about to lose the house, too. My own damn fault. I should be out prostituting myself for rent money rather than trying to make an honest living in a screwed economy. I get laid off of a company I believed in because the new "CEO" fancies himself a tech savvy guy and wants all the good ideas to come from him. What a putz. He's a smart guy, but he doesn't know what he doesn't know. Like that I had designed everything he's trying to figure out - him and his little pocket technician. Crap. Nice.
So, I have been late on my rent for the last 2 or 3 months. I don't remember. I get it in, but I've hit the last straw with the landlords. They have a whole extra month of deposit (on top of the first and last normally given). But I have broken every promise to them (which is why I don't promise people. people are always asking you to "promise" when they already know you are not in control of what happens to you on a daily basis. sets you up to fail. Well, I have again, some more.
I owed them 400 more for September by the 3rd of October. Well, I take a kick to the head, get a concussion, and my truck gets reposessed. So, I'm not driving and wouldn't be able to remember where I was supposed to go anyway. I just got a terse voicemail from the owner. If I don't have the rest of september and all of october by the 10th then she's giving me a 3 day notice to pay or quit and I lose the house.
Honestly, if my life insurance would pay in the event of suicide I'd really have to think about it...unfortunately, I've actually read my policy and it doesn't. I couldn't do it to Sara anyway. I've been a daughter who has lost her mother to suicide. That was the hardest one for me out of the 5 suicides in the family. And she's been through enough. Still...I throw up my arms in frustration threaten the sky with it. Then go cry into my dog.
I've gone through my entire house and taken pictures of everything I can sell. I'm sending them to my Uncle Sim so he can have/buy whatever he wants to stay in the family. Yes, its all family stuff. I don't have shit for furniture or household goods other than my kitchen and Sara's stuff. I've been slowly selling off stuff for a couple of years now. I don't mind minimal. More room for art, and pictures, and the wheelchair in more areas. So after uncle looks at pix and picks, then i'm calling an estate liquidator to get rid of everything else and hand me the cash.
I just need to get past this rough spot..this arid desert of financial grit...I'm doing good learning the insurance stuff and will start making money this month, but it is a process. One that will give my family something we really need again...some financial security...and me something I didn't realize I really needed...a place where I am truly a partner (not just a knowledge battery to be used and discarded)and can help take care of other people.
So...I am literally at the end of my rope and I need a knot. I am out of airspeed, altitude, and ideas all at the same time. boo, freaking, hoo. jeez I hate this song...makes me want to smack my head up against the wall until I forget my own name...
I lost the truck again. Funny thing, repo. Once they've come and gotten it and you get it back they can come take it again if you are even late. Live and learn. So, they came and got my truck and now I can't get it back without paying off the contract. Crap. Nice.
And now, I am apparently about to lose the house, too. My own damn fault. I should be out prostituting myself for rent money rather than trying to make an honest living in a screwed economy. I get laid off of a company I believed in because the new "CEO" fancies himself a tech savvy guy and wants all the good ideas to come from him. What a putz. He's a smart guy, but he doesn't know what he doesn't know. Like that I had designed everything he's trying to figure out - him and his little pocket technician. Crap. Nice.
So, I have been late on my rent for the last 2 or 3 months. I don't remember. I get it in, but I've hit the last straw with the landlords. They have a whole extra month of deposit (on top of the first and last normally given). But I have broken every promise to them (which is why I don't promise people. people are always asking you to "promise" when they already know you are not in control of what happens to you on a daily basis. sets you up to fail. Well, I have again, some more.
I owed them 400 more for September by the 3rd of October. Well, I take a kick to the head, get a concussion, and my truck gets reposessed. So, I'm not driving and wouldn't be able to remember where I was supposed to go anyway. I just got a terse voicemail from the owner. If I don't have the rest of september and all of october by the 10th then she's giving me a 3 day notice to pay or quit and I lose the house.
Honestly, if my life insurance would pay in the event of suicide I'd really have to think about it...unfortunately, I've actually read my policy and it doesn't. I couldn't do it to Sara anyway. I've been a daughter who has lost her mother to suicide. That was the hardest one for me out of the 5 suicides in the family. And she's been through enough. Still...I throw up my arms in frustration threaten the sky with it. Then go cry into my dog.
I've gone through my entire house and taken pictures of everything I can sell. I'm sending them to my Uncle Sim so he can have/buy whatever he wants to stay in the family. Yes, its all family stuff. I don't have shit for furniture or household goods other than my kitchen and Sara's stuff. I've been slowly selling off stuff for a couple of years now. I don't mind minimal. More room for art, and pictures, and the wheelchair in more areas. So after uncle looks at pix and picks, then i'm calling an estate liquidator to get rid of everything else and hand me the cash.
I just need to get past this rough spot..this arid desert of financial grit...I'm doing good learning the insurance stuff and will start making money this month, but it is a process. One that will give my family something we really need again...some financial security...and me something I didn't realize I really needed...a place where I am truly a partner (not just a knowledge battery to be used and discarded)and can help take care of other people.
So...I am literally at the end of my rope and I need a knot. I am out of airspeed, altitude, and ideas all at the same time. boo, freaking, hoo. jeez I hate this song...makes me want to smack my head up against the wall until I forget my own name...
Monday, October 5, 2009
Sunday, October 4, 2009
Saturday, October 3, 2009
Thursday, October 1, 2009
Blog Changing
The blog is going private. I should have done it before, but was torn. I now have to either do so or take it down altogether.
The format may also change. We can change it to more of a discussion board type, where everyone in the group may post to the blog as well to share stuff with Sara and everyone who watches out for her. Let me know what you think: Blog (she and I write stuff, others comment) or Board (anyone inside the group can post or comment.)
Send your email address to KristinaBaker707 a t gmail.com if you want to be included.
K
The format may also change. We can change it to more of a discussion board type, where everyone in the group may post to the blog as well to share stuff with Sara and everyone who watches out for her. Let me know what you think: Blog (she and I write stuff, others comment) or Board (anyone inside the group can post or comment.)
Send your email address to KristinaBaker707 a t gmail.com if you want to be included.
K
Subscribe to:
Posts (Atom)