it made it to the CEO level between the two hospitals (meaning it became a business decision) and they have decided not to accept Sara. So our hopes of getting her close while MediCAL stuff gets straightened out had come to a screeching halt. Sara is understandably upset and cried out of frustration. All she wants now is to be home.
I talked to the discharge planner who told me the news. She said that SR doesn't want to give her an ICU bed, even though she does't need it. They are not confident that they can adequately care for her on their ward. They made this decision after making me provide them with what our discharge plans were for AFTER Santa Rosa. They were not confident that the MediCAL budget affecting nursing availability thing would sort itself out and they'd get stuck with her.
Then the discharge planner said she wanted to talk about other alternatives...sub-acute care specifically. I told her no way, especially after Santa Rosa rejected Sara. Why on earth would I send my daughter to another sub-acute care facility when an actual acute care facility said they werent' sure they could take adequate care of her? People need to learn how to reason. I seem to be the only person who is sure we can take adequate care of her, with the proper help. We've been there every day for her and slowly built up confidence in our skills with her care, and her improvements.
So, there we are. I talked to the nursing service and they interviewed another nurse today. They have 5 other interviews for this week, trying to get people to fill positions specifically to care for Sara. Maxim asked the district manager for a rate increase for the nurses, and it was not approved. They can't cut their margin for this one case, because then they would be compelled to cut it for others. In all actuality, all people in need of care are worthy of it. I understand they can't say any one case is more important than the other with the kind of work they do.
On a much better note - Sabrina and her Dad, Scott, have been building the ramp. It is awesome and we can't express enough gratitude for their help. Kelly and her family have donated a bunch of tiling supplies and the use of their tile tools when I get started on the shower. They are also going to help out on some clothes for Sara and Michael. Thank you to everyone who has come out to help, or offer loving support in other ways. We'll get there. We'll get her home....
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