Daniel and I went up to see Sara this evening. She was so cute. They already had her back in bed when we got there. So she had a couple of trips in the cardiac chair. She is doing better being upright, and being moved.
Nurse-Deborah took the front off of her collar (she was flat and supported). This allows her neck to "breathe" and the nurse did her traech care (cleaning, etc.). I took the opportunity to work with Sara on her jaw.
I massaged her jaw joints...tough muscles...and she tried to open her mouth. She can only get it about 1/4 inch on her own. I helped a bit with pressure on her lower jaw. It is so tight. I asked her if it felt tight to her and she indicated yes. After about 20 minutes of working her jaw we had only gotten it open 1/2 inch. Its clear that they are going to have to release her jaw another way. She was able to manage a swallow while we had the collar front off. It wasn't pretty, and sure was loud, but it was a swallow. We'll take it...
Daniel read another couple of chapters of the Hobbit to Sara. So cute they are together.
She's been stable all day. Only issue is a lot of fluid in her lungs and constantly suctioning it. They are giving her Lasix to get rid of the excess fluid. Nurse-Gabriella was getting her ready for the nights rest when we left her.
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